Our next step is to tweak the meds schedule to allow larger periods of time between doses. He is also taking something for reflux to see if that helps keep the food down. He has lost 6 lbs since he has been home. If we can't get some weight back on him, they will have to put in a g-tube to allow me to feed him and give him his meds in a way that is not so irritating for him.
The other side effect we are dealing with is exhaustion. His body is fighting hard to rebuild his immune system and fight whatever is in his lungs. He sleeps for most of the morning and has little energy the rest of the day. He loves seeing his brothers come home from school and usually tries to play with them for a while when they get home. He tires very easily, though.
He is the bravest child I have ever met. He never gives up. I am amazed by him every day. He continues to do what I ask of him even though it is often uncomfortable or painful.
God has provided many things during this time:
An amazing team of doctors and nurse practitioners who care about Wilson and work tirelessly to help him get stronger and healthier.
Strength every day to do all the things he needs. Some days, it is most of our day just to give meds, see doctors, and drive back and forth to the hospital downtown.
Courage to keep taking his meds even though he knows that he will probably throw up and then have to take them all over again.
Relationship with his brothers and me. This is so important in his willingness to keep fighting and keep pushing through the exhaustion and pain.
Friends who have been supportive in many ways: cards, phone calls, texts, watching Andrew and Daniel when I am at the hospital or late getting home from a doctor's appointment.
We appreciate all of your prayers. It is good to know that in the times when the busyness of the day keeps me from praying the way I would like to, our friends are stepping in for us. Please keep praying with us that Wilson's lungs heal and that his medications continue to strengthen his immune system.