Many of you have asked me the details of the past couple of days. I love how much you care about him and our family. Here is my attempt to tell you what is happening and where we are headed without boring you to death with medical jargon that I am only pretending to understand.
Wilson Manno has had a cough and suspected TB for the past 4 months. He has been on meds but they don't seem to be working so further testing was needed. Yesterday, they did a bronchoscopy to collect some of the 'goodies' he has been hiding in his lungs. It was a very difficult day because he could not eat before the procedure. There was a mix-up about which room we would be in for the procedure and there was a lot of over-reaction about his TB status and whether he was allowed among the general public. The research and the doctors in charge of his case agree that even if he has it, he cannot spread it. The nurses on the floor did not agree. ;) We were quarantined in a room for 3.5 hours while we waited for the medical staff to be available. At 1:00, they started. By then, he was very angry and very afraid that he would not eat. Needless to say, he was very happy to have his beloved goldfish back in his hands. (ok, so he doesn't exactly look happy here but that was the anesthesia talking...not his true feelings. A mom knows.)
The view from outside of our door. (this photo was obtained illegally.)
Every person who entered our room had to wash and put on a mask and gown--and then do the reverse when they left.
Our view from inside of our 'Outbreak' room. Dustin Hoffman never showed up which was very disappointing.
They have decided that he either has TB (and is resistant to one of the meds he was taking) or has something different (but similar) called MAC. Either way, they have decided to treat both of them now instead of waiting until the cultures grow while he gets sicker.
A gift from Gramma and Grandad:
Chicken and rice and yogurt!
Giving the new picc line a spin.
We are leaving tomorrow after one more dose of meds through the line.
For those of you who know me well, this next part will shock you. I can now watch a blood draw without passing out. I can hook and unhook all the wires attached to him and still get him to the bathroom on time. And I can almost hold the cup to collect the sputum sample. Almost.